Autismum

By day: mum of an autistic tot. By night: mum of an autistic tot.

10 Tips on How to Communicate with Autistic People

Guest Post by Steve Summers*

1. Please always keep in mind that communication difficulties are common with Autism. We have difficulties in reading social cues and body language. Be patient and understanding.

2. We tend to take things literally and have often trouble reading between the lines. As a result, we may ask a lot of questions to clarify what is meant by something that you say. I have been told that I ask a lot of questions. Don’t be offended by this. It is our way of being sure that we understand what you are telling us. We may repeat back to you in our own words to try and get on the same page as you.

3. If we misunderstand something that you say, please be patient and expand on what you said and explain what you meant. Don’t assume a negative or hostile intent from us if we misunderstand something that you said. Keep in mind that communication can be difficult for us. Things that come naturally to you take extra effort by us.

4. Please don’t get offended by our communication style. We tend to be frank, honest and matter of fact. Some people may interpret this as blunt or rude. We don’t intend to offend you by not sugar coating the things that we say. We don’t intend to be rude. Please don’t get defensive or assume that we are attacking you. Remember that communicating is hard for us. Don’t make negative assumptions. Too often we get corrected or attacked by someone who fails to give us some slack and the benefit of the doubt.

5. Please don’t expect eye contact. We may be able to force eye contact, but it is not comfortable for us. Making eye contact takes a conscious effort. This effort may take away from listening and understanding what you are saying. I tend to look at a person’s mouth more often than their eyes. Other autistic people will rarely look at your face. This is ok.

6. Please keep in mind that we most likely have been rejected, excluded, ridiculed or bullied in the past. If we seem anxious or insecure this may be due to living in a world that misunderstands us and is often hostile to us. We have to work hard to reach out to others. Please work at reaching back to us with understanding and kindness. If we feel that you are ignoring us we will feel bad about that. We may persist in asking for feedback from you. Please be reassuring and clearly express your support for us.

7. Please don’t speak down to us. Treat us as equals. We may sound flat or have an unusual tone to our voice. We may not speak with our voice at all. We may need to type our words. Please be patient with us. It may take us a while to formulate our answers.

8. Please don’t talk too loudly or yell at us. It is very jarring to us. It makes me jump when someone comes up to me and talks too loudly. It is like having someone jump out in the dark yelling “BOO!” at me. It causes an adrenalin dump in my body. I don’t like this.

9. Please do NOT touch us without warning. It will make us jump. We don’t like unexpected touches.

10. Please don’t assume that we lack empathy or emotion. We pick up on negative or judgmental attitudes. We know when people look down on us or are hostile to us. We will shut down if you show us a lack of respect.

Please keep in mind that we are all different. These issues will vary from person to person. The above tips are written from my perspective as an autistic person. This is just a guide. Feel free to ask me any questions so that I may expand and clarify any areas that aren’t clear to you. Thank you for reading this guide. ~ Steve Summers

*Steve Summers

I was diagnosed with Asperger Syndrome (part of the Autism Spectrum) as an adult. I was diagnosed following my 11-year-old son’s diagnosis with Aspergers. I am happy to have my diagnosis. It was like a light being turned on that illuminated my entire life in a new way. Now I understand why I never really ‘fit in.’ It is like having a huge weight lifted off of my shoulders to have my diagnosis.

I don’t feel that people should make divisions between parts of the Autism Spectrum. I am autistic and I want to work to make the world a better, more understanding and accepting place for all autistic people. We need to work together for the benefit of all on the Autism Spectrum. 

I wrote this list due to continuing difficulties that I have had with the give and take of communicating with others. Many people seem too easily offended because they fail to understand these things about me. We all need understanding and acceptance.

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35 comments on “10 Tips on How to Communicate with Autistic People

  1. Shamim
    30 May, 2012

    >Hi Lucewoman and thankyou for cienmmtong. It is true what you say; just because someone wants to socialise it is assumed that they are not autistic. The other wrong assumption that I have come across is the view that because someone is with other children that that child is socialising. Yet it is the nature of the interaction and communication that needs to be observed and listened to rather than just observing them from afar in the playground.Hi Lizbeth. I agree plus a girls symptoms of ASD can be more subtle and hardly recognised or understood. But because they are subtle doesn’t mean they are any less difficult for her than a boy who may show his ASD in a more expressive way such as my son.

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  3. linda
    26 June, 2012

    Hi have 15 year old son with autism doing well in mainstream school but its always hard from day to day!!!

    • Autismum
      26 June, 2012

      I have a relative of a similar age with Asperger’s. He is doing really well and has some wonderful friends but it’s clear he struggles sometimes too.

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  5. Mareika Holmes
    20 August, 2012

    I’m a NT and I find this info of great value…keep writing tips for the communit,so we can learn about how you think, process,interperate,dream,communicate back to us… NT’s. Great work

  6. david
    20 August, 2012

    for more understanding try the autism support network

  7. Katrina Moody
    21 August, 2012

    Great post about things that ring true whether you are an adult or child with autism. My aspie hubby still isn’t always able to look me in the eye, but I understand this about him. My guys would agree with most of this list as well – respect is the name of the game, for sure!

    • Autismum
      21 August, 2012

      Thanks for dropping in xx

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  12. Restless Hands
    28 January, 2013

    This is lovely… but I’m saddened that it’s needed. I have so many autie friends that all these things are second nature to me now and I forget that most NTs find them difficult!

  13. Nicole
    17 April, 2013

    I’m really grateful for this article! A close friend of the family adopted an autistic kid and I was so excited to finally meet him. I prepared myself before this encounter to be able to communicate with the kid, as I know that it’s difficult to talk when it comes to autism. I found lots of well-written articles like this one, but it was hard to put the tips into action. When I met the little boy, I was very nervous and everything I said appeared wrong to me. I felt really bad, even though I tried very hard. Everybody told me that this was normal and I shouldn’t be too worried about it. But I was so determined to make the little boy feel safe around me, that I consulted a professional coach on a website called Your24hCoach. I told my coach about the “unsuccessful” encounter that day and he was really skilled! He kinda explained the world to me from the eyes of an autistic person. All of a sudden I understood what it might be like to be autistic. Helped me a lot! The next encounter was successful for both of us :)

    • Autismum
      17 April, 2013

      Thanks for your comment. I love that an autistic child has found a loving home and so much effort is being made to understand him. You are an amazing, supportive friend.

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    17 May, 2013

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  16. Anon
    7 August, 2013

    To Steve Summers: While this helps me understand things a bit better, I need to add that “honesty” is not always based on the truth, but on how you yourself feel about something. There are many things that influence this, including how you were raised, what you’ve seen around you etc. I mean, you are still making judgements and not always speaking of facts. I’m saying this since a few months ago, an autistic acquaintance who I’d thought of as a new friend said something that really hurt me very much, and it was not based on any facts, but on life as he saw it which may come from how some people around him view things. I mean, he may have been repeating other people’s biases. So he said this thing to me and it was very upsetting and really shook me up for a while. When I tried to tell him that saying things like that are very hurtful and untrue and affect the other person’s self esteem, he only focussed on himself and said, “I don’t like what you are saying, It upsets me”. Such a response can only seem selfish. Although he had also explained just before this that he was autistic, it seemed that everything had to be about him. He’s autistic so I have to be nice to him and not tell him how he upset me, but he can say what he likes to me and not learn not to make biased remarks around one topic.

    Telling us to be patient is one thing but we all have areas where we can learn to respect others’ feelings and this should be mutual. The strongest feeling I had in that situation was that he was chauvinistic and selfish, and using his problem as his excuse. He was in his 30s and a professional who deals with many people, so he can learn not to say certain things to people he hardly knows. And this one topic would have wrong for most people in this society.

    On the other hand, I had a previous autistic acquaintance who was sometimes a little arrogant seeming and competitive, but I never knew him to make biased or cruel remarks. I know everyone is different, but people can still learn.

  17. ameisha
    1 September, 2013

    Hi, I know someone who is autistic but he can not speak at all, he cn only pronounce a couple of vowels. I tried to communicate nd play with him today as it was first time meetin him, I told him I was his friend as he asked me. He was tryin to play clapping game with me and asked to tie shoelaces however I think that he is very clever in some aspects considering he can not communicate like he can always find his way back to places! Please give me advice for him as I think he is severely autistic.

    • Autismum
      1 September, 2013

      Hiya, I will let Steve know you are asking for advice. In the meantime the blog tiny grace notes is a wonderful source of info and you may want to try We Are Like Your Child – a wonderful blog written by autistic people for non autistic people.

  18. Dan
    10 September, 2013

    I feel like you captured a lot of me in your guidelines. We are obviously different people and don’t necessarily exhibit the same symptoms, but I almost felt like you were talking about me. For once, I know that someone else totally gets it. Thank you. =)

    • Autistic Aloha
      30 September, 2013

      You are very welcome. It really helps me as well to know that I am not alone. Others have very similar experiences. It is great to hear someone say, “Me too!” We don’t feel so alone or isolated when we know that others are going through these issues as well.

  19. Autistic Aloha
    30 September, 2013

    Reblogged this on Autistic Aloha and commented:
    Go check out the wonderful blog, Autismum. I have some guest posts hosted over there from before I began my own blog. This ’10 Tips’ blog post is one that has been very popular. Go check out the other posts as well on Autismum.com. Lot’s of great reading there! <3

  20. Donald Belanger
    30 September, 2013

    I have an 18year old son who is severely autistic and non verbal. it has always amazed me what the reaction of other children in a public place such as the supermarket is. adults tend to stare at us more than the kids do.

  21. ilene richards
    12 October, 2013

    Really appreciate ur comments and am taking them very seriously I do have one question: How does one listen to non verbal person and communicate with him?

    • Autistic Aloha
      17 October, 2013

      May I suggest that you check out this blog by my non-speaking Autistic friend, Amy Sequenzia?

      ‘Non-Speaking Autistic Speaking’ –
      “I am a non-speaking Autistic activist, writer and poet. Once said to be less than human, I found my voice and I now make sure I am heard. …” ~ Amy Sequenzia

      http://nonspeakingautisticspeaking.blogspot.com/

  22. Christina
    17 October, 2013

    Nice answer back in return of this issue with solid arguments and explaining
    everything regarding that.

  23. Gresa
    19 December, 2013

    Hi , my daughter is two and was reacently diagnosed with autisem . Eventhough I try to read as much as I can find about Autisem , I cant seem to find out what’s the best way to interackt with my child. If anyone has any advice that would be very helpfull:)

  24. Marianne
    30 December, 2013

    One more thought about communicating with a person with Asbergers. I have found that my older son enjoys texting much more than a phone call. Communication is very important and we need to figure out a way to keep in touch. Telephones scare him while texting is very non threatening.

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  26. Gabby
    19 March, 2014

    my friend somewhat, suffers from austim, we just figured it out, i am trying to help her, it is tough, but we will make it through, please send her your thoughts and prayers thank you for this great site,

  27. http://www.adobe.com/
    23 March, 2014

    I’m amazed, I have to admit. Seldom do I come across a blog that’s both educative
    and engaging, and let me tell you, you’ve hit the nail on the head.
    The issue is something too few folks are speaking intelligently about.
    Now i’m very happy that I came across this in my search for
    something regarding this.

  28. floodedroses
    27 March, 2014

    I have a younger cousin with Autism, he has been diagnosed and it is official. He is 2 years old and all I want to do is talk to him as he always is walking away, or he says random words and..I dont know, how do I talk to him?

  29. Pingback: What in the World Is Going On, September 2012 Edition // Autism Awareness Centre

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This entry was posted on 7 May, 2012 by in Autism, Communication, Guest and tagged .

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